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    Last Updated: 02/22/2026

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    MediFind found 18 doctor with experience in Emery-Dreifuss Muscular Dystrophy near Ann Arbor, MI. Of these, 13 are Experienced and 5 are Advanced.

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    18 providers found
      Experienced in Emery-Dreifuss Muscular Dystrophy
      Experienced in Emery-Dreifuss Muscular Dystrophy

      Michigan Medicine Overseas Travel Clinic

      1500 E Medical Center Dr Fl 3, 
      Ann Arbor, MI 
       (0.8 miles away)
      Languages Spoken:
      English

      Sarah Kohnstamm is a Cardiologist in Ann Arbor, Michigan. Dr. Kohnstamm is rated as an Experienced provider by MediFind in the treatment of Emery-Dreifuss Muscular Dystrophy. Her top areas of expertise are Aortic Valve Stenosis, Heart Failure with Preserved Ejection Fraction (HFpEF), Constrictive Pericarditis, Heart Failure, and Pacemaker Implantation.

      Experienced in Emery-Dreifuss Muscular Dystrophy
      Pediatric Cardiology
      Experienced in Emery-Dreifuss Muscular Dystrophy
      Pediatric Cardiology

      University Of Michigan Medical Center

      1500 E Medical Center Dr, 
      Ann Arbor,, MI 
       (0.8 miles away)
      Languages Spoken:
      English

      Mark Russell is a Pediatric Cardiologist in Ann Arbor,, Michigan. Dr. Russell is rated as an Experienced provider by MediFind in the treatment of Emery-Dreifuss Muscular Dystrophy. His top areas of expertise are Hypertrophic Cardiomyopathy (HCM), Cardiomyopathy, Congenital Heart Disease (CHD), Hypoplastic Left Heart Syndrome (HLHS), and Patent Foramen Ovale Repair.

      Advanced in Emery-Dreifuss Muscular Dystrophy
      Physiatry | Neuroradiology
      Advanced in Emery-Dreifuss Muscular Dystrophy
      Physiatry | Neuroradiology

      Regents Of The University Of Michigan

      1500 E Medical Ctr, Suite 0331, 
      Ann Arbor, MI 
       (0.6 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Mary Schmidt is a Physiatrist and a Neuroradiologist in Ann Arbor, Michigan. Dr. Schmidt is rated as an Advanced provider by MediFind in the treatment of Emery-Dreifuss Muscular Dystrophy. Her top areas of expertise are Dysferlinopathy, Spinal Muscular Atrophy (SMA), Spinal Muscular Atrophy Type 3, and Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease). Dr. Schmidt is currently accepting new patients.

      Learn about our expert tiers
      Advanced in Emery-Dreifuss Muscular Dystrophy
      Neurology | Pediatrics | Pediatric Neurology
      Advanced in Emery-Dreifuss Muscular Dystrophy
      Neurology | Pediatrics | Pediatric Neurology

      Regents Of The University Of Michigan

      1500 E Medical Ctr, Suite 0331, 
      Ann Arbor, MI 
       (0.6 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Erin Neil-Knierbein is a Neurologist and a Pediatrics provider in Ann Arbor, Michigan. Dr. Neil-Knierbein is rated as an Advanced provider by MediFind in the treatment of Emery-Dreifuss Muscular Dystrophy. Her top areas of expertise are Danon Disease, Pompe Disease, Dysferlinopathy, and Duchenne Muscular Dystrophy. Dr. Neil-Knierbein is currently accepting new patients.

      Advanced in Emery-Dreifuss Muscular Dystrophy
      Neurology
      Advanced in Emery-Dreifuss Muscular Dystrophy
      Neurology

      Regents Of The University Of Michigan

      1500 E Medical Ctr Dr, 
      Ann Arbor, MI 
       (0.7 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      Ann Little is a Neurologist in Ann Arbor, Michigan. Dr. Little is rated as an Advanced provider by MediFind in the treatment of Emery-Dreifuss Muscular Dystrophy. Her top areas of expertise are Inclusion Body Myositis, Polymyositis, Myasthenia Gravis, Stent Placement, and Transmyocardial Revascularization.

      Advanced in Emery-Dreifuss Muscular Dystrophy
      Advanced in Emery-Dreifuss Muscular Dystrophy
      2205 Commonwealth Blvd, 
      Ann Arbor, MI 
       (3.0 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Joseph Hornyak is a Physiatrist in Ann Arbor, Michigan. Dr. Hornyak is rated as an Advanced provider by MediFind in the treatment of Emery-Dreifuss Muscular Dystrophy. His top areas of expertise are Charcot-Marie-Tooth Disease, Hereditary Sensory Neuropathy Type 1 (HSN1), Cerebral Palsy, and Spasticity. Dr. Hornyak is currently accepting new patients.

      Advanced in Emery-Dreifuss Muscular Dystrophy
      Advanced in Emery-Dreifuss Muscular Dystrophy
      Ann Arbor, MI 
       (4.0 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Angeline Bowman is a Physiatrist in Ann Arbor, Michigan. Dr. Bowman is rated as an Advanced provider by MediFind in the treatment of Emery-Dreifuss Muscular Dystrophy. Her top areas of expertise are Cerebral Palsy, Myotonia Congenita, Spasticity, and Spastic Diplegia Infantile Type. Dr. Bowman is currently accepting new patients.

      Experienced in Emery-Dreifuss Muscular Dystrophy
      Experienced in Emery-Dreifuss Muscular Dystrophy

      Regents Of The University Of Michigan

      1500 E Medical Ctr, Suite 0331, 
      Ann Arbor, MI 
       (0.6 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Alecia Daunter is a Physiatrist in Ann Arbor, Michigan. Dr. Daunter is rated as an Experienced provider by MediFind in the treatment of Emery-Dreifuss Muscular Dystrophy. Her top areas of expertise are Cerebral Palsy, Spastic Diplegia Infantile Type, Spasticity, X-Linked Infantile Spinal Muscular Atrophy, and Rhizotomy. Dr. Daunter is currently accepting new patients.

      Experienced in Emery-Dreifuss Muscular Dystrophy
      Pediatrics | Internal Medicine
      Experienced in Emery-Dreifuss Muscular Dystrophy
      Pediatrics | Internal Medicine

      Regents Of The University Of Michigan

      1500 E Medical Cntr Dr, Univeristy Of Michigan Med, 
      Ann Arbor, MI 
       (0.6 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Jason Kahn is a primary care provider, practicing in Pediatrics and Internal Medicine in Ann Arbor, Michigan. Dr. Kahn is rated as an Experienced provider by MediFind in the treatment of Emery-Dreifuss Muscular Dystrophy. His top areas of expertise are Focal Dystonia, Obesity in Children, Type 2 Diabetes (T2D), and Fukuyama Type Muscular Dystrophy. Dr. Kahn is currently accepting new patients.

      Experienced in Emery-Dreifuss Muscular Dystrophy
      Neurology | Physiatry | Neuroradiology
      Experienced in Emery-Dreifuss Muscular Dystrophy
      Neurology | Physiatry | Neuroradiology

      Regents Of The University Of Michigan

      1500 E Medical Ctr Dr, 
      Ann Arbor, MI 
       (0.7 miles away)
      Languages Spoken:
      English, Italian
      Accepting New Patients
      Offers Telehealth

      Eva Feldman is a Neurologist and a Physiatrist in Ann Arbor, Michigan. Dr. Feldman is rated as an Experienced provider by MediFind in the treatment of Emery-Dreifuss Muscular Dystrophy. Her top areas of expertise are Peripheral Neuropathy, Diabetic Neuropathy, Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), and Autonomic Neuropathy. Dr. Feldman is currently accepting new patients.

      Experienced in Emery-Dreifuss Muscular Dystrophy
      Experienced in Emery-Dreifuss Muscular Dystrophy

      Regents Of The University Of Michigan

      1500 E Medical Ctr Dr, 
      Ann Arbor, MI 
       (0.7 miles away)
      Experience:
      44+ years
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Roger Albin is a Neurologist in Ann Arbor, Michigan. Dr. Albin has been practicing medicine for over 44 years and is rated as an Experienced provider by MediFind in the treatment of Emery-Dreifuss Muscular Dystrophy. His top areas of expertise are Parkinson's Disease, Movement Disorders, Huntington Disease, Dementia, and Deep Brain Stimulation. Dr. Albin is currently accepting new patients.

      Experienced in Emery-Dreifuss Muscular Dystrophy
      Experienced in Emery-Dreifuss Muscular Dystrophy

      Regents Of The University Of Michigan

      1500 E Medical Ctr Dr, 
      Ann Arbor, MI 
       (0.7 miles away)
      Experience:
      10+ years
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Alan Salgado is a Neurologist in Ann Arbor, Michigan. Dr. Salgado has been practicing medicine for over 10 years and is rated as an Experienced provider by MediFind in the treatment of Emery-Dreifuss Muscular Dystrophy. His top areas of expertise are Spinal Muscular Atrophy Type 3, Spinal and Bulbar Muscular Atrophy, Spinal Muscular Atrophy (SMA), Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), and Thrombectomy. Dr. Salgado is currently accepting new patients.

      Experienced in Emery-Dreifuss Muscular Dystrophy
      Neurology
      Experienced in Emery-Dreifuss Muscular Dystrophy
      Neurology

      University Of Michigan Medical Center

      1500 E Medical Center Dr, 
      Ann Arbor, MI 
       (0.8 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      Amro Stino is a Neurologist in Ann Arbor, Michigan. Dr. Stino is rated as an Experienced provider by MediFind in the treatment of Emery-Dreifuss Muscular Dystrophy. His top areas of expertise are Chronic Inflammatory Demyelinating Polyneuropathy, Peripheral Neuropathy, Chronic Polyradiculoneuritis, and Familial Dysautonomia.

      Experienced in Emery-Dreifuss Muscular Dystrophy
      Experienced in Emery-Dreifuss Muscular Dystrophy

      Back And Pain Center At Burlington Building

      325 E Eisenhower Pkwy, 
      Ann Arbor, MI 
       (2.6 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      Maryam Berri is a Physiatrist in Ann Arbor, Michigan. Dr. Berri is rated as an Experienced provider by MediFind in the treatment of Emery-Dreifuss Muscular Dystrophy. Her top areas of expertise are Brown-Sequard Syndrome, Autonomic Dysreflexia, Spasticity, and Neurogenic Bowel.

      Experienced in Emery-Dreifuss Muscular Dystrophy
      Experienced in Emery-Dreifuss Muscular Dystrophy
      2205 Commonwealth Blvd, 
      Ann Arbor, MI 
       (3.0 miles away)
      Languages Spoken:
      English, Polish, Spanish
      Accepting New Patients

      Timothy Krater is a Physiatrist in Ann Arbor, Michigan. Dr. Krater is rated as an Experienced provider by MediFind in the treatment of Emery-Dreifuss Muscular Dystrophy. His top areas of expertise are Cerebral Palsy, Spastic Diplegia Infantile Type, Dysferlinopathy, Spasticity, and Rhizotomy. Dr. Krater is currently accepting new patients.

      Experienced in Emery-Dreifuss Muscular Dystrophy
      Experienced in Emery-Dreifuss Muscular Dystrophy

      Regents Of The University Of Michigan

      24 Frank Lloyd Wright Dr, 
      Ann Arbor, MI 
       (4.0 miles away)
      Languages Spoken:
      English, Spanish
      Accepting New Patients
      Offers Telehealth

      Gianna Rodriguez is a Physiatrist in Ann Arbor, Michigan. Dr. Rodriguez is rated as an Experienced provider by MediFind in the treatment of Emery-Dreifuss Muscular Dystrophy. Her top areas of expertise are Neurogenic Bowel, Paraplegia, Spasticity, and Autonomic Dysreflexia. Dr. Rodriguez is currently accepting new patients.

      Experienced in Emery-Dreifuss Muscular Dystrophy
      Experienced in Emery-Dreifuss Muscular Dystrophy

      Spine Clinic At Chelsea Health Center

      14700 E Old US Highway 12, 
      Chelsea, MI 
       (13.9 miles away)
      Languages Spoken:
      English

      Troy Labounty is a Cardiologist in Chelsea, Michigan. Dr. Labounty is rated as an Experienced provider by MediFind in the treatment of Emery-Dreifuss Muscular Dystrophy. His top areas of expertise are Aortic Valve Stenosis, Coronary Heart Disease, Cardiomyopathy, Aortic Valve Replacement, and Transcatheter Aortic Valve Replacement (TAVR).

      Experienced in Emery-Dreifuss Muscular Dystrophy
      Advanced Heart Failure and Transplant Cardiology | Cardiology
      Experienced in Emery-Dreifuss Muscular Dystrophy
      Advanced Heart Failure and Transplant Cardiology | Cardiology

      Regents Of The University Of Michigan

      1051 N Canton Ctr Rd, Umhs Canton Health Center, 
      Canton, MI 
       (13.2 miles away)
      Experience:
      18+ years
      Languages Spoken:
      English, Hindi, Tamil
      Accepting New Patients

      Supriya Shore is an Advanced Heart Failure and Transplant Cardiologist and a Cardiologist in Canton, Michigan. Dr. Shore has been practicing medicine for over 18 years and is rated as an Experienced provider by MediFind in the treatment of Emery-Dreifuss Muscular Dystrophy. Her top areas of expertise are Heart Failure, Pulmonary Edema, Cardiomyopathy, Heart Transplant, and Cardiac Ablation. Dr. Shore is currently accepting new patients.

      Showing 1-18 of 18

      Last Updated: 02/22/2026

      What is the definition of Emery-Dreifuss Muscular Dystrophy?

      Emery-Dreifuss muscular dystrophy is a condition that primarily affects muscles used for movement (skeletal muscles) and the heart (cardiac muscle). Among the earliest features of this disorder are joint deformities called contractures. Contractures restrict the movement of certain joints, most often the elbows, ankles, and neck, and usually become noticeable in early childhood. Most affected individuals also experience muscle weakness and wasting that worsen slowly over time, beginning in muscles of the upper arms and lower legs and later also affecting muscles in the shoulders and hips.

      When should I see an Emery-Dreifuss Muscular Dystrophy doctor near Ann Arbor, MI?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing an Emery-Dreifuss Muscular Dystrophy doctor near Ann Arbor, MI?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Emery-Dreifuss Muscular Dystrophy doctors near Ann Arbor, MI?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Emery-Dreifuss Muscular Dystrophy doctors near Ann Arbor, MI?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with an Emery-Dreifuss Muscular Dystrophy doctor near Ann Arbor, MI?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Emery-Dreifuss Muscular Dystrophy doctor search results page. 

      Why is it important to get a second opinion from a different Emery-Dreifuss Muscular Dystrophy doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with an Emery-Dreifuss Muscular Dystrophy doctor near Ann Arbor, MI?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Emery-Dreifuss Muscular Dystrophy doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Emery-Dreifuss Muscular Dystrophy doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Emery-Dreifuss Muscular Dystrophy doctors near Ann Arbor, MI?

      Look for the filter feature on the left side of the Emery-Dreifuss Muscular Dystrophy doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find an Emery-Dreifuss Muscular Dystrophy doctor that offers video calls?

      Look for the filter feature on the left-side of the Emery-Dreifuss Muscular Dystrophy doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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